PNWBD monitors legislation that affects the bleeding disorders community and advocates for changes in policy when needed. We work hard to keep up to date on issues and work to educate our local politicians and health care officials about bleeding disorders and the resources for those affected to maintain the quality of life.
How Can You Engage Your Legislators?
As a constituent, advocacy is a powerful tool. There are many ways you can reach your legislators. The most common and effective forms are writing a letter, sending an email, calling your legislator, and meeting with your legislator and/or their staff.
Get in touch with your federal, state, and local elected leaders: https://www.usa.gov/elected-officials
We can help!
Contact Us to find out more about becoming an effective advocate.
PNWBD Bleeding Disorder Awerness Day
You have the power to impact the future of your own access to better treatment and care through your own advocacy. Policymakers in Salem, OR and Washington, DC need to hear from you in order to make educated and informed decisions on legislation impacting you and your family. Their awareness of bleeding disorders starts with you. Become your own advocate and make a difference.
Every year PNWBD invites community members to stand with us at the Oregon State Capital in Salem to keep our elected officials informed of the struggles facing people who live with bleeding disorder. Community members come together for dinner & training the night before to understand current legislation and gain confidence to tell your story to elected officials. The next morning starts with early breakfast with elected officials followed by scheduled appointments with elected officials at the Oregon State Capital. Contact our office to get involved. Become a member of PNWBD to receive exclusive information and invitations for our upcoming events, like Advocacy Day.
For more information or to attend Advocacy Day please contact our office. Become a member of PNWBD and receive exclusive information and invitations.