You have the power to impact the future of your own access to better treatment and care through your own advocacy. Policymakers in Salem, OR and Washington, DC need to hear from you in order to make educated and informed decisions on legislation impacting you and your family. Their awareness of bleeding disorders starts with you. Become your own advocate and make a difference.
Every year PNWBD invites community members to stand with us at the Oregon State Capital in Salem to keep our elected officials informed of the struggles facing people who live with bleeding disorder. Community members come together for dinner & training the night before to understand current legislation and gain confidence to tell your story to elected officials. The next morning starts with early breakfast with elected officials followed by scheduled appointments with elected officials at the Oregon State Capital. Contact our office to get involved. Become a member of PNWBD to receive exclusive information and invitations for our upcoming events, like Advocacy Day.