Upcoming Events
You are invited!
For more information or to attend PNWBD events please contact our office. Become a member of PNWBD and receive exclusive information and invitations for our upcoming events.
Event dates & times are subject to change.
Scholarships, Travel Grants & Opportunities
Pacific Northwest Bleeding Disorders is pleased to offer an Educational Travel Grant for national meetings of either Hemophilia Federation of America or National Bleeding Disorders Foundation. These annual national level meetings enable our community to come together and exchange information on a wide variety of topics, from the basics of diagnosis to the most recent and relevant developments in treatment and technology.
Contact PNWBD for more information, requirements and application.
Pacific Northwest Bleeding Disorders is pleased to offer a non-voting Teen Leadership position on the PNWBD Board of Directors until the position is filled. Great addition to add on your college application!
Contact PNWBD for more information, requirements and application.
About Us
OUR MISSION
Pacific Northwest Bleeding Disorders enhances the quality of life for individuals with bleeding disorders and their families through advocacy, assistance, outreach, education and research support.
Bleeding Disorder Advocacy
It’s more important than ever to advocate for the bleeding disorder community and others who live with chronic, lifelong, and or rare diseases. Unfavorable changes to access to health care and prescription cost issues are being considered by the Oregon Legislature in 2025.
Join us January 9, 2025, @ 6:00 PM for an Advocacy Day FAQ session to get your questions answered, learn more about upcoming legislation and the importance of telling YOUR story, and hear from others who have participated in the past. Email [email protected] for the meeting link.
Join us on February 10 for the PNWBD annual Bleeding Disorders Awareness Day at the Oregon State Capitol! Even better, join us on February 9th for a Super Bowl party and training for Bleeding Disorders Awareness Day.
Keeping our elected officials informed of the struggles facing people who live with a bleeding disorder is a challenge PNWBD faces constantly. Our voice needs to be heard and understood at the Capitol in Salem. Join us for training, education, and informing our elected officials of the needs we have in the bleeding disorders community.
Guest Column: State Rep. Emerson Levy delivers on meaningful solutions
Oct 22, 2024
BY MADONNA MCGUIRE SMITH
READ MORE
Why Become a Member?
Member Benefits
Exclusive Information:
Stay informed about the latest developments, programs, and initiatives within the bleeding disorders community. And access to our quarterly printed & digital newsletter.
Event Invitations:
Receive special invitations to PNWBD’s events, including educational programs, family events, and advocacy initiatives.
Community Connection:
Join a network of individuals and families who understand and support each other’s journey.
Bleeding Disorders 101
Bleeding disorders are when the blood does not clot properly due to a deficiency or malfunction of clotting factor proteins or platelets. Bleeding disorders causes the body to bleed longer and more frequently than someone without a bleeding disorder. If left untreated, bleeding disorders can lead to chronic pain, arthritis, deformity, and disability.
Fundraising for Pacific Northwest Bleeding Disorders
YETI
Youth Effectively Transitioning to Independence promotes confidence & supports teens, 14-20, with bleeding disorders as they transition into independence.
Teens, bleeding disorder organizations, & representatives from treatment centers across the country gather for a weekend for simultaneous teen weekend event & overlapping adult trainer program. YETI is an experiential train-the-trainer weekend conference created by PNWBD. Participants learn and experience the best way to plan and manage a teen program.
Become PNWBD Volunteer