Our Mission

Pacific Northwest Bleeding Disorders enhances the quality of life for individuals with bleeding disorders
and their families through advocacy, assistance, outreach, education, and research support.

ADVOCACY

We work hard to keep up to date on issues and educate our local
politicians and healthcare officials about bleeding disorders and the
resources for those affected to maintain their quality of life.

EDUCATION

Our educational opportunities offer a wide variety of presentations,
including topics such as medical treatments, self-infusion, insurance
issues, legislative challenges, coping skills, and mental health.

PATIENT ASSISTANCE

Designed to provide emergency relief for individuals with a bleeding
disorder and/or their families. PNWBD hosts several community
fundraisers & opportunities to donate to fund the patient assistance
program.

CONNECTION

Each year, PNWBD hosts an array of camps, retreats, and meetings to
promote lasting relationships between members, the HTC, and PNWBD
staff and form a strong, supportive community.

Diversity, Equity, and Inclusion Statement

We, at Pacific Northwest Bleeding Disorders (PNWBD), are committed to diversity, equity, and inclusion. As supported by our mission, we believe in respecting, uplifting, and supporting diverse perspectives and lived experiences within our community. We are dedicated to dismantling systemic barriers that have historically affected marginalized communities including, but not limited to, the BIPOC community, the LGBTQIA+ community, people with disabilities, and undocumented immigrants. We will continue to work to create equitable practices and inclusionary programs that highlight and support underserved individuals with bleeding disorders.

Nonprofit Designation

In December 1963, Pacific Northwest Bleeding Disorders was established as a non-profit. PNWBD (previously known as Hemophilia Foundation of Oregon) is a 501 (c)3 non-profit organization (tax id #93-0551733) and depends on donations like yours to provide services and programs to people with bleeding disorders in Oregon and SW Washington. Direct Donations are 100% tax-deductible provided they meet IRS regulations.

Pacific Northwest Bleeding Disorders proudly serves the
Oregon and SW Washington Bleeding Disorder Community.
Become a Member to receive exclusive information & event invitations.

Meet the Pacific Northwest Bleeding Disorders Team:

Madonna McGuire Smith
Executive Director
[email protected]
Michelle Fernandez
Fundraising Events
Manager
[email protected]
Juli Pugh
Community Outreach
Coordinator
[email protected]
Dominic Fernandez
Special Events Assistant
& Bookkeeping Assistant
[email protected]
Tarryn Milne
Bookkeeper
[email protected]
Alejandrina Monge
Bilingual Assistant & Hispanic
Connection Coordinator
a.monge@pnwbd.org