Our Mission
Pacific Northwest Bleeding Disorders enhances the quality of life for individuals with bleeding disorders and their families through advocacy, assistance, outreach, education and research support.
ADVOCACY
We work hard to keep up to date on issues and work to educate our local politicians and health care officials about bleeding disorders and the resources for those affected to maintain the quality of life.
EDUCATION
Our educational opportunities offer a wide variety of presentations including such topics as medical treatments, self-infusion, insurance issues, legislative challenges, coping skills and mental health.
CONNECTION
Each year, PNWBD hosts an array of camps, retreats & meetings to promote lasting relationships between members, the HTC and PNWBD staff to form a strong, supportive community.
PATIENT ASSISTANCE
Designed to provide emergency relief for individuals with a bleeding disorder and/or their families. PNWBD hosts several community fundraisers & opportunities to donate to fund the patient assistance program.
Diversity, Equity, and Inclusion Statement
We, at Pacific Northwest Bleeding Disorders (PNWBD), are committed to diversity, equity, and inclusion. As supported by our mission, we believe in respecting, uplifting, and supporting diverse perspectives and lived experiences within our community. We are dedicated to dismantling systemic barriers that have historically affected marginalized communities including, but not limited to, the BIPOC community, the LGBTQIA+ community, people with disabilities, and undocumented immigrants. We will continue to work to create equitable practices and inclusionary programs that highlight and support underserved individuals with bleeding disorders.
Nonprofit Designation
In December 1963, Pacific Northwest Bleeding Disorders was established as a non-profit. PNWBD (previously known as Hemophilia Foundation of Oregon) is a 501 (c)3 non-profit organization (tax id #93-0551733) and depends on donations like yours to provide services and programs to people with bleeding disorders in Oregon and SW Washington. Direct Donations are 100% tax-deductible provided they meet IRS regulations.
Pacific Northwest Bleeding Disorders proudly serves the Oregon and SW Washington Bleeding Disorder Community.
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Meet the Pacific Northwest Bleeding Disorders Team:
Madonna McGuire Smith
Executive Director
[email protected]
Michelle Fernandez
Fundraising Events Manager
[email protected]
Juli Pugh
Community Outreach Coordinator
[email protected]
Tarryn Milne
Bookkeeper
[email protected]
Dominic Fernandez
Special Events Assistant & Bookkeeping Assistant
[email protected]