Madonna McGuire Smith, PNWBD Executive Director, speaks on Co-Pay Accumulators on OPB

PNWBD continues to advocate for policy change. Get involved – let your voice be heard! Contact Madonna McGuire Smith at

Check out the Article and Recording Here | OPB

Oregon Unite Walk

Join us on Saturday, June 3, 2023, at the Portland Rose Quarters for the 11th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk unites those with bleeding disorders with family, friends, neighbors, and coworkers to support important programs and services to help people with Hemophilia, von Willebrand Disease, and other rare bleeding disorders in our community.


Email for more information.

Family Camp

A weekend camp for families to connect with other families, learn more about bleeding disorders and how to manage them, and of course to have fun!

June 22 – 25
Camp Myrtlewood | Myrtle Point, Oregon
Registration Closes June 1st
Contact for more details or to register!

Bleeding Disorder Summer Camp for Kids

A week long summer camp for children with bleeding disorders and their siblings ages 8-17. A safe opportunity for children to experience the outdoors, enjoy camp activities such as swimming, repelling on high rope courses, archery, horseback riding, kayaking, crafting and campfires. Children meet others with a bleeding disorder, learn about their own bleeding disorder and how to manage their bleeding disorder throughout their lifetime.

July 31 – August 5
Camp Tapawingo | Falls City,  Oregon
Registration Closes June 1st
Contact for more details or to register!


Pacific Northwest Bleeding Disorders distributes an informational newsletter once each quarter of the year. Visit the link to access our latest newsletter!

2023 | Q1 | Newsletter

Become A Member

PNWBD is a volunteer organization dedicated to providing education and support to families affected by bleeding disorders. Fill out the member information form online or fill out the paper pdf form and become part of this dynamic foundation. By supplying your information, you will be notified of upcoming events, programs specific to your diagnosis, and support services. Join our community! Membership is FREE for people with bleeding disorders and their immediate family members.

Become A Member

PNWBD About Us

PNWBD serves people living with Hemophilia, von Willebrand Disease, and other rare bleeding disorders. Our service area includes Oregon and the counties of SW Washington. We provide education, advocacy, and many other services to help our members manage their disease and improve their quality of life.

About Us
Take Action


Understand what living with a bleeding disorder means.


Find out about upcoming events that you can experience.


Join and share the community on social media.


Help make a difference in a person with a bleeding disorders life.

What We Do

Pacific Northwest Bleeding Disorders enhances the quality of life for individuals with bleeding disorders and their families through advocacy, assistance, outreach, education and research support.


Our educational opportunities offer a wide variety of presentations including such topics as medical treatments, self-infusion, insurance issues, legislative challenges, coping skills and mental health.

Read More


PNWBD monitors legislation that affects the bleeding disorders community and advocates for changes in policy when needed. You have the power to impact the future of your own access to better treatment and care through your own advocacy.

Read More


PNWBD proudly hosts two annual fundraisers. In spring we hold the annual Unite walk for bleeding disorders. And in fall we host our annual Shooting for the Stars Auction.

Read More


YETI, one of the strongest programs in the world of bleeding disorders across the US, is an experiential train-the-trainer weekend conference created by PNWBD.

Read More