Upcoming Events
You are invited!
For more information or to attend PNWBD events please contact our office. Become a member of PNWBD and receive exclusive information and invitations for our upcoming events.
Event dates & times are subject to change.
About Us
OUR MISSION
Pacific Northwest Bleeding Disorders enhances the quality of life for individuals with bleeding disorders and their families through advocacy, assistance, outreach, education and research support.
Bleeding Disorder Advocacy
Madonna McGuire Smith, PNWBD Ex. Director, encourages Gov. Kotek to sign HB 4113 into Law.
Madonna McGuire Smith, PNWBD Ex. Director, stands with Oregon Rep. Levy on HB 4113 regarding banning co-pay accumulators for patient assistance.
Rep. Levy endorses HB 4113 forcing insurers to accept patient assistance toward a person’s deductible.
Nineteen other states have banned Co-Pay Accumulators. Oregon legislators should make Levy’s bill, House Bill 4113, a priority.
Contact your legislators to tell them to support legislation that allows all patient assistance to count towards insurance out-of-pocket maximums. The most common and effective forms are writing a letter, sending an email, calling your legislator, and meeting with your legislator and/or their staff.
Why Become a Member?
Member Benefits
Exclusive Information:
Stay informed about the latest developments, programs, and initiatives within the bleeding disorders community. And access to our quarterly printed & digital newsletter.
Event Invitations:
Receive special invitations to PNWBD’s events, including educational programs, family events, and advocacy initiatives.
Community Connection:
Join a network of individuals and families who understand and support each other’s journey.
Bleeding Disorders 101
Bleeding disorders are when the blood does not clot properly due to a deficiency or malfunction of clotting factor proteins or platelets. Bleeding disorders causes the body to bleed longer and more frequently than someone without a bleeding disorder. If left untreated, bleeding disorders can lead to chronic pain, arthritis, deformity, and disability.
Fundraising for Pacific Northwest Bleeding Disorders
YETI
Youth Effectively Transitioning to Independence promotes confidence & supports teens, 14-20, with bleeding disorders as they transition into independence.
Teens, bleeding disorder organizations, & representatives from treatment centers across the country gather for a weekend for simultaneous teen weekend event & overlapping adult trainer program. YETI is an experiential train-the-trainer weekend conference created by PNWBD. Participants learn and experience the best way to plan and manage a teen program.
Become PNWBD Volunteer